Wednesday Update

Thank you to each and every one for your love, sympathy, and compassion. Melanie and I have been blessed over and over again as we’ve read your blog comments, the Scripture you left, the poems, the hymns . . . the Lord has used each word to comfort us. Our Father has surrounded us with His care expressed by not only Himself, but others as well. We are amazed at how many people have suffered losses similar to ours. Thank you for loving Susannah.

The Lord has granted strength for each step. Things I thought would be impossible I’ve been able to do. This is not my strength or wisdom but God’s graciousness.

Tomorrow evening is the public visitation. Please pray both for this, and the family graveside service on Friday. We desire for God to be glorified in all areas. This is so out of our realm and comfort zone, yet our heart’s desire is to trust and honor Him. We want people to meet our little Susannah. We desire that God would use her life and death for His purposes in hearts.

We’re preparing a photo slide-show of our precious days with Susannah that we’ll post in the next day or so. Many of you have loved her and will hopefully be blessed by seeing some more of her. We delight in the four days we had with our SusieQ.

Job 1:20-22 has been very significant to us. My pastor shared this with us, and we have been meditating on it since. My mom memorized it while holding Susannah her last night with us, she quoted it out loud many times and thought Susannah probably learned it before she did. Job, after being told of the loss of his children and possessions, got up from where he was, tore his rob, shaved his head, fell to the ground and worshiped. David, (2 Samuel 12:20) after being told of the death of his first son by Bathsheba, arose from where he was, washed, and went into the house of the Lord where he worshiped. Melanie and I are desiring a response to Susannah’s home going that involves heart-felt worship while prostrate before our Lord.

Melanie sang the first verse and chorus of Trusting Jesus to Susannah frequently. I will close with it.

Simply trusting ev’ry day,
Trusting thro’ a stormy way;
Even when my faith is small,
Trusting Jesus, that is all.

Refrain:
Trusting as the moments fly,
Trusting as the days go by;
Trusting Him whate’er befall,
Trusting Jesus, that is all.
(Edgar Page Stites)

Nathan

Final Susannah Joy Maxwell Update

It is with broken, grieving hearts that we need to let you know that our Father’s plans for Susannah were much different than ours. Having spent the past three days loving and cherishing every moment with our little girl today we said a final goodbye as her life gently slipped from her.

God is faithful even in the hard times. I must say that I never had a desire to learn that. However, He who didn’t spare His own Son but gave Him up for us all also has a plan for Susannah, Melanie and my life.

Even though this has been far and away the most challenging, yet also sweetest, time of our lives God took our little Susannah from us in a most gentle way. My heart’s deep concern was that I would have to make some very difficult decisions regarding her care. I did not have to and am so grateful. The Lord had His hand on her little body and it was apparent the entire day that she was not long with us.

Please continue to pray for us as we make this difficult transition. In particular for Melanie as her body is still going through recovery.

Thank you to everyone for their love and support. Little Susannah had such an immeasurable prayer covering.

We love our little Susannah and thank you for doing the same.

Nathan

Difficult news

We’ve had a difficult talk with a neo-natalogist today. Our desire is to be fully yielded to the will of our Lord Jesus Christ. What that will entail we don’t know. Susannah has been given to the Lord. We’ve asked Him to use her as He sees fit. We thought we knew what that looked like. Now we’ve had placed directly before us the fact that our little one may never have fully been with us after birth. We believe life begins at conception and ends when the spirit leaves the body. Susannah’s spirit may have already left.

In total honesty, there is no measurable evidence of brain activity. At first this wasn’t a big deal but each hour that goes by increases the likelihood that it won’t start. I’ve asked the Dr what would cause him to reverse his diagnose and he said she would need to wake up and be able to follow movement with her eyes. Frankly this is about like asking her to climb out of her isolette.

We are praying for Gods direction. We are asking Him to take this difficult decision from us and if He chooses not to give us the grace to do what we need to.

We love you all and thank you for your prayers and support. I read a bunch of blog comments to Susannah last night. She’s even keeping up with what you are saying.

Nathan

Susannah Joy Update

Thank you’all for your faithful fervent prayers. I’ve been able to read all the blog comments as I can see them on my phone.

Being able to write another update is a privelege. It means we’ve had another part of a day with Susannah. Melanie and I cherish each moment we get with her. She is so precious. She hasn’t even smiled and our hearts are totally smitten.

Her blood pressure did better today. This is a huge answer to prayer. Since it would rise and fall it was hard to get excited about how it was doing. But I think there was some improvement. The drs felt like they were able to get her ivs stabilized so they weren’t having to constantly adjust what was being given and how much.

She is still totally listless and lacks even basic reflexes. Melanie and I would be so happy just to see a finger move or an eyelid flutter.

The hospital staff has been great. Melanie got to hold Susannah today. This NICU team is committed to babies being held. This is one reason we selected this hospital.  Took three nurses to get her out of the incubator and over to her mother. There have been a lot of tears shed of late and there were quite a few more shed when that precious little girl was set on Melanie.

We have fully given little Susannah to our Lord and are looking to Him for our strength and courage.

Nathan

The Maxwell family and ministry blog of Titus2.com.