We’ve had a difficult talk with a neo-natalogist today. Our desire is to be fully yielded to the will of our Lord Jesus Christ. What that will entail we don’t know. Susannah has been given to the Lord. We’ve asked Him to use her as He sees fit. We thought we knew what that looked like. Now we’ve had placed directly before us the fact that our little one may never have fully been with us after birth. We believe life begins at conception and ends when the spirit leaves the body. Susannahâ€™s spirit may have already left.
In total honesty, there is no measurable evidence of brain activity. At first this wasn’t a big deal but each hour that goes by increases the likelihood that it won’t start. I’ve asked the Dr what would cause him to reverse his diagnose and he said she would need to wake up and be able to follow movement with her eyes. Frankly this is about like asking her to climb out of her isolette.
We are praying for Gods direction. We are asking Him to take this difficult decision from us and if He chooses not to give us the grace to do what we need to.
We love you all and thank you for your prayers and support. I read a bunch of blog comments to Susannah last night. She’s even keeping up with what you are saying.